Patient ​Worthy

Rare Patient Stories,

Well Done

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Who Are We?

Since 2015, Patient Worthy has ​been helping rare disease ​patients around the world tell ​their stories.

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Your Story, Your ​Community

Whether it’s the latest in rare disease news, ​courageous patient profiles or heartfelt interviews ​on our award-winning podcast, Patient Worthy ​strives to bring the champions of the rare ​community together.


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Become a Patient ​Ambassador

Share your authentic story with ​other patients, caregivers, and ​medical professionals. Raise ​awareness and inspire change!

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Le​arn More

Contact Us or Learn More at the Links ​Below

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Get In Touch Today!

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Stay Up to Date!

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